Panacea Patient Recruitment Limited “Privacy” and “Special Category” Policy
This notice applies to all visitors to our patient recruitment websites and anyone who takes part in our recruitment process to be a volunteer in a clinical trial. It explains how our organisation collects, processes, stores and passes your information to the 3rd party organisation running the clinical trial you are applying for.
If you go on to take part in a clinical trial then the data controller of your data in relation to that trial will be someone else, usually the organiser or sponsor of the trial. If this happens, we will let you know the identity of the new data controller either now if available or at the time when the identify does becomes available.
What type of information do we collect and process?
- Name, Address and contact details (email and telephone numbers)
- Doctors name and address
- Date of birth
We may also collect, store and use more sensitive personal information referred to by the ICO as “Special categories” information. Particularly sensitive personal information requires higher levels of protection. We need to have further justification for collecting, storing and using this type of personal information for the purposes of considering your suitability for a clinical trial. We may process special categories of personal information only with your explicit consent. What type of special categories information do we collect and process?
How we collect your data?
- Information about your health, including medical conditions, health and sickness records.
- Ethnicity information.
Most of the personal information we process is provided to us directly by you.
How will we use your data?
- when you complete an online submission form to establish your suitability for a clinical trial(s).
- the information you submit is imported onto our secure servers and encrypted in real time.
- we may also receive additional personal information directly by telephoning you if required.
We use the information that you have given us in order to
How we store your data?
- evaluate your note of interest by our qualified nurses.
- if satisfactory this is then passed to one of our doctors to confirm and authorise your note of interest.
- once authorised your data is shared securely with the clinical organisation running the clinical trial you have noted your interest in.
What are your data protection rights?
- Your information is encrypted and securely stored in the cloud on servers in the UK.
- We keep personal information for 3 years. We will then ask you if you wish your information to be removed securely thereafter.
Under data protection law, you have the following rights including: Your right of access
– You have the right to ask us for copies of your personal information. We may charge you a small fee for this service. Your right to rectification
– You have the right to ask us to rectify information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete. Your right to erasure
– You have the right to ask us to erase your personal information in certain circumstances. Your right to restriction of processing
– You have the right to ask us to restrict the processing of your information in certain circumstances. Your right to object to processing
– You have the the right to object to the processing of your personal data in certain circumstances. Your right to data portability
– You have the right to ask that we transfer the information you gave us to another organisation, or to you, in certain circumstances.
If you make a request, we have one month to respond to you. Please contact us at the address below if you wish to make a request.
Name: Panacea Patient Recruitment Limited
Address: First Floor, Swan Street, Manchester, United Kingdom, M4 5JW.
Phone Number: 0161 854 1322
January 2020. How to contact the appropriate authority.
You can also complain to the ICO if you are unhappy with how we have used your data.
The ICO’s address is…
Information Commissioner’s Office
Helpline number: 0303 123 1113